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maureen |
hello everyone |
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feelines |
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Welcome Maureen! I can relate to a long, drawn out ordeal of dealing with TMJD and related disorders, since I have been dealing with it most of my adult life,
about 27 years. Maybe Tackley (Kevin) from the UK will stop by and post a response. I have had treatments similar to what he has had and have made some
progress. I go to a neuromuscular specialist with a clinic consisting of several dentists, a medical doctor, an acupuncturist and a naturopath. I have treated
with everyone except the acupuncturist so far. An integrated approach is necessary, especially in chronic cases. Best of luck to you....
Last Edited By: feelines
08/27/08 15:41:38.
Edited 1 times.
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maureen |
thanks to feelines | ||
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thanks for your feedback, will give accupuncture a go, in the uk there are no intergrated clinics, they are years behind the usa in treatment of tmj, in
fact most physical therapists have never heard of it.Hope your progress continues, good luck
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little miss sunshine |
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Hi Maureen, Ive just read your post and I must agree with you. I am also from the UK and I get the feeling that when I go to the docs or dentist its just like
a wild stab in the dark as they are not used to dealing with it. I find it surprising actually, since Ive had TMJ I've looked it up on the net etc and it
is not an uncommon problem so you would think they would be more knowledgeable. I have tried accupuncture in the past, but found it was the same as
physiotherapy for me in that it gave me relief from pain and stiffness for a couple of hours after the treatment but then I was back to square one! But
everyone is different so I hope it works for you - anything is worth a try aint it!?
Take care Claire XXXX |
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feelines |
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Oops, I meant to say that I saw everyone except the acupuncturist instead of "accept." I actually did have acupuncture a couple of times, but it
didn't do anything for me other than have a temporarily relaxing effect....
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Elaine2004 |
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Maureen,
I found this on one of Cymy's posts. I don't know if you have looked at the Library thread on our main page. There is a lot of information about TMJ. I copied this from one of the posts. Some patients with TMJ have symptoms such as ringing or buzzing in the ears, earaches, dizziness, or even altered hearing? A little muscle called Tensor veli palatini is responsible. This muscle has many duties, one of which is to close off the eustachian tubes. The eustachian tubes connect the throat to the middle ear and are responsible for making air pressure in the closed chamber of the middle ear equal to air pressure outside. This occurrence is rarely noticeable. You probably do notice your eustachian tubes at work when you clear your ears during an elevator ride or in flight. The Tensor veli palatini muscle gets its signal from a branch of the same nerve that supplies the external pterygoid muscle, one of the chief muscles involved in TMJ. When the external pterygoid muscle goes into spasm, the Tensor veli palatini also can contract because of the spasm/ contraction feedback mechanism. Hence, with closed eustachian tubes, and an inability to equalize middle-ear pressure, a patient can experience symptoms that mimic middle-ear problems.
TMJ is basically a muscle-spasm problem. Because of this,
standard diagnostic tests, blood work- ups, EEGs, or X-rays yield no information for a correct diagnosis. Often a sufferer is led to believe that little can
be done for the problem except to block the pain rather than attacking the reason for it. Sometimes a label is put on the headache migraine is a common one
not as a true diagnosis, but in an effort to calm the patient. In many cases, attempts to relieve the pain are in vain, leaving the TMJ patient suffering and
often feeling helpless.
For the most part, TMJ is mostly muscular. My TMJ was caused by a wreck and it sounds like yours may have been too. Whiplash is a common cause of TMJ. I have suffered with this condition for 23 years. I fell into the surgery craze in the 80's and it has done absolutely nothing for me except cost me a lot of $$$$$. The main thing is to try to get the muscles to relax. Heat feels good when you are achy. When I get the bad headaches the only thing that gives me any relief is ice. I put it on the back of my neck/head. I wish I had the answers for you but I don't. We are all here trying to help each other by telling our experiences and just maybe someone can gain something from it. We do have a lot of information on this site so check out the many posts. The TMJ information Library on the main page may be of some help. Welcome to our forum. We look forward to hearing more about you. Elaine |
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ginnic |
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Maureen,
Sorry you are so miserable with this but at least you know we can understand what you are saying and feeling! Also, I have no idea if TMJ is "better known" in the US - maybe with us being a much larger country in size and population it just lends itself to more people having it and more doctors and dentists etc being around to deal with it? However......if you are having the problems you describe and lots of muscle spasm type stuff, have you ever tried doing your own intraoral massage to attempt to loosen up the muscles that can affect the joint itself? It is probably more difficult to try to explain (esp over the internet!) to someone than it is to actually do it. I had a very sore jaw the other day (the puppy whacked me with his head!) and it was uncomfortable when I did the massage but felt better the next day. Good luck! Ginni in Wisconsin |
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Michelle Denise |
Welcome Maureen! | ||
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Hi Maureen,
I also have ear problems with them popping, feeling full and real sensitive to loud noises. I also have neck and headache problems. At times a muscle relaxer will help me with the symptoms by relaxing the muscle. I had tried many things such as massage, braces, surgery to put the disc back in place (failed), physical therapy for my neck, trigger point injections, seen several different surgeons and each on had a different opinion. I have even been to Mayo Clinic in Rochester, MN. I think if all the insurance companies in the USA would cover TMJ just like they do every other joint in the body possibly we might have more research in this area. I live in Missouri where TMJ is not covered by insurance, but in my neighboring state Arkansas it is covered. It makes me crazy. At this time with one failed surgery, I am not looking for anything but to keep my symtoms under control. I have severe headaches, and like Elaine I find a purchased ice pack from the drugstore to be quite helpful. It does not freeze solid, and I can mold it to my forehead and temple. We have a lady on here that goes to accupunture monthly with good results. I have heard others say chiropractic manipulation helps. I have found stress to really make my TMJ worse, so I am working on that area. Plus, I have to watch my posture while I am sewing or on the computer. I can't do either for very long. There is a lot of good information on here and we have a search feature. It is hard to find new and current reasearch on the internet, but we continue to try. One thing I want to mention is that I have heard of some people developing an open bite after wearing a NTI. I don't know if you have worn it for very long or not. Also the TMJ Association has some good information on their site. I thought I would mention them as they have a website with current information. I hope you can find some helpful information here and welcome to the board. Best wishes, Michelle |
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lu jones |
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Maureen, Sorry you had to find us. I know this is a great group of caring friends. I go for acupunture every month.It relaxes the tight muscles for me. I am
also going to start getting a massage. I soak in a hot tub for the pain as well.
I wish you well. This tmj is no fun. Lu |
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maureen |
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hi to little miss sunshine,feelines,Elaine2004,ginnic,michelle denise,and lu jones,thank you all for finding the time to reply to my tmj woes, its nice to know
you are not alone, and thanks for sharing your stories with me,I would have sent you all individual thanks but only had a few hours sleep last night (courtesy
of tmj) it is 8 pm now here in uk, and hopefully when i retire to my comfy bed in about 1 hour the pulsating and tingling in my jaw will have a rest to, off to
have accupuncture next tuesday, will let you know how i went on, so goodnight from me , best wishes to you all. maureen
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Michelle Denise |
Accupuncture | ||
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Hi Maureen,
I will be interested to hear how your accupuncture went. I hope to hear good news from you. Best wishes, Michelle |
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tackley |
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Hello, this is Kevin. I too, live in the UK & have been visiting this website for about 3 years now. If you want to contact me direct to discuss treatment
please do, my email address is elliottdempsey@aol.com. I've seen some real 'turkey's' over the last 6 years, but I have found some real good
people. I will gladly let you know who they are if you are interested. The standard nhs medical treatment is 'crap'!!!!
Feel free to contact me anytime. Good luck Kevin ( Oxford) |
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maureen |
me and accupuncture | ||
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just to let you know how I got on at the accupuncture clinic, Had all these needles in my face and neck which was okay, but 1hour later I was in agony when i went for a sandwich for my lunch, when i began to chew my whole jaw went into spasm and swelled up, I rang the accupuncturist, but she was out to lunch, so i ended up in the hospital a&e, the doc said one of the needles had hit a nerve, and suggested i keep an ice pack on my jaw for the next 24 hours, thank fully that worked, so i will try some physio next week, as my jaw muscles feel very tight on left side, and the tingling inside my jaw is non stop, and travelling to side of my mouth and tip of my nose, hope others have a more positive experience with accupuncture , had it years ago for a back problem and worked fine, but it seems my jaw just doesnt like it. bye for now, oh i got some natural calm magnesium last week and it seems to relax you and i am sleeping better. bye for now maureen. |
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lu jones |
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Dear Maureen, I've had acupuncture for years for TMJ and never had anything like that. So sorry to hear about the nerve.
My Dr doesn' use many needles on my face and neck. Keep in touch.Lu |
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tackley |
Accupuncture | ||
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I had accupunture shortly after all my problems started 6 years ago. I had numerous sessions, but it proved useless. It was relaxing during the treatment
sessions, but it had no long term effects.I gave up the treatment after 20+ sessions.
I had terrible tingling sensations all over my jaw and face. I never thought that they would go away, but it as ! It's taken 6 long years of trying many different treatments, some useless like accupunture, but others proved really helpful. I would suggest you contact Mr Graham Munro-Hall in Stagesden nr. Milton Keynes, Prolotherapy at the Oving Clinic in West Sussex & Myofascial Release Therapy. Aswell as TMJ you may well have a Cavitation problem. I had a number of them that really give you bad symptoms. Again Mr Graham Munro-Hall can help with these. I too tried physio, it again proved relaxing during the sessions but as a long term pain reliever it was not very good. Feel free to ask for any advice. Kevin I |
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Michelle Denise |
I am so sorry Maureen. | ||
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Wow, Maureen was the acupuncture recommended to you. You mentioned you called the acupuncture lady, but she was out to lunch. I hope you did get a hold of
her and explain what happened, so maybe she will learn something from your experience. I know that doesn't help your situation at all.
I would like to try the Prolotherapy, but it is not done here anywhere close. It really s*c*s when you pay to for a service and then you have to find someone to fix what the other professional messed up. It seems like you should get your money back, but that never happens. Please keep us posted on what you are trying and what works and what doesn't. It really helps other TMJ victims to hear about your experience. Best wishes, Michelle |
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little miss sunshine |
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Hi, im sorry to hear about your experience, sounds awful. I hope you have recovered now. I had physio after I tried accupuncture, the physio said that accupuncture never worked as she could not feel any "trigger points" she called them. She said that normally if accupuncture is going to help, you will have these trigger points. I would think that this reaction you had is not normal, I agree with michelle that you should contact her to tell her - she may be able to explain why it happened so you can avoid it happening again? Take care Claire XXXXX |
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tackley |
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To all sufferers in the UK. Please feel free to contact me direct, Kevin Dempsey, user name Tackley. I'am contactable via my son's email address
'elliottdempsey@aol.com'.
Please be assured that my intentions are 100% genune. I have had TMJ problems since 2002, shortly after having a wisdom tooth extracted. During this period my wife has been very supportive, even though some expensive treatments proved useless. Splints proved useless, various therapists proved useless, but after six years of trying various treatments I'am now 99% sorted ! I have had treatments in America and Germany, but all of the treatments that have proved to be the best have been carried out in the UK. Feel free to ask for advice. Kevin |
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